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  1. M

    The joy of UCLA...

    So..I had an appointment at UCLA yesterday. I was hoping that I would get some answers, but the only answers I have received were that I am the most healthy person in the entire world. My nerves are amazing, my emg (#2) is clear. The only things they can find wrong is my gait is completely...
  2. M

    Update

    Hi all, I finally got to the ALS clinic and they think I may have MG. It is as rare as ALS, but symptoms are supposed to be treatable and life expectency is supposed to be close to normal. It is more than I could have wished for. They are sending me to UCLA to attempt to confirm because my...
    • Midnight
    • Thread
    • als breathing breathing issues bulbar clinic fatigue friend life problems scared speech swallowing swallowing issues symptoms tests update
    • Replies: 10
    • Forum: General discussion about ALS/MND
  3. M

    Inquiry about Blood Tests

    Hello you great people: So...after finally tracking down an MD clinic that does work with ALS patients, I spoke with them found I absolutely have to have a referral from a doctor, regardless of the type of insurance I have. So, I have to go to my normal doctor to get a note saying that he...
    • Midnight
    • Thread
    • als camp caregivers clinic cost family free hope insurance kids life reading scared story stress test tests treatment wanted work young
    • Replies: 3
    • Forum: General discussion about ALS/MND
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