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hi all, long time no write. I just wanted to say Ann Marie was a sweetheart with a true gift of words that really helped me at my darkest hour. You all were. Warm wishes to you all.

hand exercises and diagnosis I have one of my kids small squishy ball toys and I have one of those clampy hand exercisers. At first it was a matter of literally making myself open and close my hand as exaggerated at I could as many times a day as I could remember. It was slow to progress, but...

Bulbar symptoms Hi there, I have had some pretty significant bulbar symptoms and have been given a lot of feedback regarding this subject from great people with firm diagnosed. There is "bulbar als", which I really was concerned I had because I couldn't swallow. It wasn't that it was painful...

I saw this at a health & wellness expo last year and I was pretty intrigued. They had demonstrations going on the entire time and you could literally see the water changing colors as the feet stayed in the foot bath. I am always a little skeptical of "miracle treatments" without proof, but I...

Hi quality, I am keeping my fingers crossed for you that you will get some answers and start getting better. I know the nerves get so racked before an appointment, when at the same time a week feels a million miles away. I will be sending good thoughts your way.

One year left Hi again, I just want to throw this out there for you to think about. If I were you, I would go to your doctor and have him sign off on it anyway (I'll bet he would even if he thinks you have several years because of the serious nature of the disease) and go ahead and apply...

Dream Foundation I'd highly recommend this foundation. They are not too far from where I am, so I have had some dealings with them making dreams come true from people I have known. One lady...Sussana...had always dreamed of putting on an art show and they made it happen. Just get your...

I went to UCLA the beginning of December really hoping to just get some answers. I ended up seeing Dr. Graves (it took several months to get in) and he was courteous and fast and mostly his interns handled things. Although he was kind and simple, it did seem like he was not that thorough to me...

Hi Sharon, I read your post and you have humbled me and given me some perspective. As irritated as I was I am grateful that I do not have any diagnosis. Thank you. It sounds like you are on track looking into your options. We have actually been contemplating making a move because of stairs...

So..I had an appointment at UCLA yesterday. I was hoping that I would get some answers, but the only answers I have received were that I am the most healthy person in the entire world. My nerves are amazing, my emg (#2) is clear. The only things they can find wrong is my gait is completely...