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  1. robynp

    Summers back.

    My husband is a retired Lieutenant from MA and he sends you a salute!!
  2. robynp

    My wife starts NP001 on Monday, 5/1/17

    I have been in the NP001 study being done in Charleston for the last few months. All I can say is I have no problems at all. Being a double blind study I do not know if I have received the drug or placebo. I did have one bout of tingling and mild burning upon the first infusion. Good Luck...
  3. robynp

    overdoing it

    I can barely walk without grabbing something to hold on to, I can use rollater and limp my way into mall perhaps or grocery store but my legs are so tired. Takes my rest of day to recover. Am I ready for wheelchair??
  4. robynp

    PALS roll call Wednesdays (or whenever) PALS ONLY PLEASE

    Checking in from sunny Myrtle Beach!!!
  5. robynp

    2013 BraunAbility Dodge Grand Caravan

    Not quite ready for this, but does anyone know if these types of vehicles can be leased
  6. robynp

    Just want to turn back time...

    I am the PAL and I have the same type of issue. I look at my childrens', grandchildrens' and husband and mom's pictures and just cry. i am too young to die. I dont want to leave them. I dont want for them to go through this. I have been on all sorts of antidepression drugs...therapy...
  7. robynp

    Np001

    I as well have been identified as a good candidate. I am awaiting my appointment date for the medical screening.:smile:
  8. robynp

    Things are getting pretty real...

    I would love that!:)
  9. robynp

    Things are getting pretty real...

    michelleann80 You are only about 3 1/2 hrs from us! Perhaps a day trip!
  10. robynp

    Caregiver/husband

    i am going to discuss this with my therapist tomorrow! Yes, i do believe on some level he is burying his head. He is very headstrong but ver loving. I thinl that he is having trouble wrapping his head around this. Now I can tell he is very angry with himself but no apology thus far. MEN!
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