<removed quoted text--LG>
You're absolutely right Laurie, which is exactly why I stay off this site and discourage her from ever visiting. In fact after 2 years membership this is the first, and probably the last post. There's just no room for a specific question to render a specific answer...
A year ago, she got on 60mg prednisone and went from using a walker to doing laps around walmart with no assistance. It helped with inflammation but mostly she gained significant strength. She stopped due to weight gain and getting the moon face, which are not good reasons.
Her walk became...
#2. is more likely than #1.
I apologize for not mentioning this:
a) we lost our firstborn to genetic disorder, b) 2nd born has genetic abnormality linked to autism, dementia, and epilepsy c) wife lost an aunt to neuromuscular disease back in the 80s d) wife is one of 4 siblings all of whom...
She had 3 EMGs, the last one a year ago.
1st EMG: ALS, but also said multilevel radiculopathy could not be ruled out.
2nd EMG: multilevel polyneuropathy
3rd EMG: possible ALS or multilevel radiculopathy (NOT a very good tiebreaker)
My wife is in the area of probable ALS.
Her first symptoms were late 2015 and 2.5 years later she can still walk with assistance, speak, swallow, and breathe nornally.
She was on lunasin for a month and seemed to improve fine motor movement and in the past responded well to high dose...