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  1. M

    Living with ALS

    Thanks for all your time on this site. Yes I can walk a little but the gov does not give me any money besides my rent and food. So no way to get out of the house and that is it for me. I deal with what I get. And I went to 5 doctors before the last one told me I have ALS . Crazy train still rolling.
  2. M

    Living with ALS

    Thanks for the info. I still just want off this crazy train. No one has ever said just lay back and let things happen. You make things happen. There is no cure.
  3. M

    Living with ALS

    You people are so nice and I know some of you have been dealing with this bad problem for longer than me? I don't want to live with this problem of als . Stop the bus I want off! This is the most horrible thing that can happen to a human. In my life. I need help with getting the stuff I need to...
  4. M

    Horable pain

    Thank you all for the great info. I can't get a doctor to give me anything for pain.
  5. M

    Phase II Amylyx Trial at MGH

    Maybe a good thing? We can hope
  6. M

    Feeling Sad

    Why were we made to have so many bad things happen to us? You put your words so nice to me that I am thinking about my wife and all she does. Just not right for this to happen to good people.
  7. M

    Horable pain

    Does any one have bad pain with ALS? Might be from my back and bad disc's? Any way I can't find any doctors around Boise that will give out pain Meds . They all say something about the DEA bothering them. Needing help with my pain and all the emotions that flood the brain. Very strange trip so far.
  8. M

    New to als

    Thank you all so much. Not sure my liver will take it and don't know for sure yet. Ken
  9. M

    New to als

    Was told last Friday that I have als. Kind of strange out here? Not sure what to do? And to take that new drug to give a few months of life? Heard bad things about it. Does anyone take it? Would you please tell me about it?
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