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  • Users: Faith27
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  1. F

    Here again

    Hi I haven’t been here in a while, to keep story short my grandmother died at 72 with bulbar, 4 of her brothers as well around same age. My mother died at 67 diagnosed at 65 and a cousin of hers diagnosed at 68 died at 70. I’m 39 years old and since she was diagnosed I started twitching...
  2. F

    C9orf72

    I have not posted in a while, but mom passed on Feb 22 from respiratory failure, she lived 16 months with the disease and what was heartbreaking is that despite us knowing this would happen we did not know it was going to be so soon, from laughing with her on Saturday to seeing her fall sleep on...
    • Faith27
    • Thread
    • back children diagnosed early family fear foot onset questions respiratory respiratory failure sleep stress twitching weakness young
    • Replies: 5
    • Forum: Familial ALS (FALS)
  3. F

    FALS recently learned

    I knew of my grandmother dying of ALS but thought that was it (she died at 73). Last year my mother began with a foot drop and she saw a thrillion Drs, dont know how many CT scans and MRI's. Until last week where it was confirmed it is ALS at age 65. Upon review of fam hx turns out 5 of my...
    • Faith27
    • Thread
    • age als anxiety cramps diagnosis dying fals foot foot drop kids mri questions story twitches wanted
    • Replies: 4
    • Forum: Familial ALS (FALS)
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