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Letty - I cried myself asleep - a lot. I told myself (when stressed about care-taking) that it was, unfortuntely, temporary. But the relationship with my mom was hard because I was caring for her while my heart was breaking. We laughed a LOT. We watched funny shows/movies - I told her...

My mom's doctor sent her to the Cleveland Clinic for an "official" diagnosis with an ALS specialist. She did not choose to get treatment there, however. We live in Toledo, Ohio and we have a local MDA here. (Cleveland is 2 hours away). The doctor who looked at her spent about 15 minutes with...

My sympathies to you and your family. It's wonderful that she was surrounded by all of you. My mom passed this Christmas Eve. She decided to sneak out without any of us though...

Hi Jaime I went through the same thing when my mom was diaagnosed. My husband and I became her caretakers. It wasn't easy - but it was an incredible journey for us all. I honestly do not believe my mother and I would have had such a close bond had she not been ill. I know that sounds...

I don't post much - but I read a LOT here. This site has been my lifeline for me and my mom. The last I posted the whole home care vs nursing home thing was driving me nuts - I wanted to take care of mom. Then I got hospitalized for over a week with MRSA (I kid you not) I got out and for a...

OK MDA sent me to another social worker. I am awaiting for a return call. I wrote a letter to my congresswoman too. Hey - it won't do any good - but boy I feel better!

\I am calling MDA tomorrow - mom IS a member there. I have had the insurance company say that they can evaluate mom and WILL give her 5-hours a day 5 days a week. Every social worker (hospital and rehab) said that they have NEVER seen that happen. MDA has their own social worker - the lady at...

We ran into that (we aren't allowed to suction) when my mom fell and ended up in the hospital this past week. (She's in rehab now... it's all very hideous) - Guess what I found out because I ask a billion questions and complain - if you get her doctor to say you can suction her - TA DA! Like...

Never give up, Never let up, Never lose faith. My new mantra. Thanks you guys. If it comes down to it - I will quit my job. Not sure how survival will be having to do that - but I know God will work all on out. Thanks for the suggestions - I get frustrated with the hospital social workers -...

My mom would get the lemon flavored sponges and sponges without flavor. She would take the flavorless ones and dip them in things she liked and rub her tongue with them. She doesn't do that now - now the sponges are used for soaking in water and biting down on to moisten her mouth! We've used...