Thanks for your kind words, Kim. There is no road map for this situation. The twins are heading off to their first year of college. and my 23-year-old has offered to move in with his dad. This, along with wanting to help in general, is another reason I would like to be on board to help. He will...
I am not sure if he is bulbar onset, as nobody has really spoken to me yet about the details of his disease. Quite frankly, I am very concerned for the kids. I know FALS is rare, but I do want to be prepared. And thank you for the opinion on the NutriBullet -- I have never owned or used any such...
This is what I was thinking as well. I would love to be there as a sounding board; just someone to spend time with, who he doesn't have to work at being a "host" in his home... he is a very publicly polite guy, a good trait that my oldest son especially has inherited. But sometimes it is to his...
You are reading my heart. Thank you. As for the financial end of it, I know there are some insurance policies, etc., but again -- don't want to bring it up. He is a financial genius, and probably knows some of the ins and outs. I also understand that health insurance is resistant to home care...
Thank you. It is he and his family who are bringing up the money. I want to give it to him but the need is so great for continuing to care for the kids, and for college. I'm 56 and not able to gain full-time work after being out of the workforce 17 years as a mom. (I was in advertising, so there...
Thank you. I have contacted the clinic where he was diagnosed, and spoke with a specialist who shared this with me (for others who may be reading):
The first step, loss of motor control in the early stages (hands grasping, loss of ability in legs), can make cooking a meal quite hard. They will...
Hi. Thanks for being here. My ex, the father of our three kids, was just diagnosed with ALS. I cannot imagine anything worse for any of them. I'm here to look for advice in navigating a very awkward and strained situation. He is the father of our children, one is 23, and there are 18-yr old...