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    Help an Ex just diagnosed

    Thanks for your kind words, Kim. There is no road map for this situation. The twins are heading off to their first year of college. and my 23-year-old has offered to move in with his dad. This, along with wanting to help in general, is another reason I would like to be on board to help. He will...
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    Help an Ex just diagnosed

    I'm worried about all of that, Gooseberry! And the delayed emotions resulting from these inabilities.
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    Help an Ex just diagnosed

    Exactly, on all points. Thank you. It is a shame that money has to even be part of this horrible enough dialogue.
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    Help an Ex just diagnosed

    I am not sure if he is bulbar onset, as nobody has really spoken to me yet about the details of his disease. Quite frankly, I am very concerned for the kids. I know FALS is rare, but I do want to be prepared. And thank you for the opinion on the NutriBullet -- I have never owned or used any such...
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    Help an Ex just diagnosed

    This is what I was thinking as well. I would love to be there as a sounding board; just someone to spend time with, who he doesn't have to work at being a "host" in his home... he is a very publicly polite guy, a good trait that my oldest son especially has inherited. But sometimes it is to his...
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    Help an Ex just diagnosed

    You are reading my heart. Thank you. As for the financial end of it, I know there are some insurance policies, etc., but again -- don't want to bring it up. He is a financial genius, and probably knows some of the ins and outs. I also understand that health insurance is resistant to home care...
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    Help an Ex just diagnosed

    Thank you. It is he and his family who are bringing up the money. I want to give it to him but the need is so great for continuing to care for the kids, and for college. I'm 56 and not able to gain full-time work after being out of the workforce 17 years as a mom. (I was in advertising, so there...
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    Help an Ex just diagnosed

    Thank you. I have contacted the clinic where he was diagnosed, and spoke with a specialist who shared this with me (for others who may be reading): The first step, loss of motor control in the early stages (hands grasping, loss of ability in legs), can make cooking a meal quite hard. They will...
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    Help an Ex just diagnosed

    Hi. Thanks for being here. My ex, the father of our three kids, was just diagnosed with ALS. I cannot imagine anything worse for any of them. I'm here to look for advice in navigating a very awkward and strained situation. He is the father of our children, one is 23, and there are 18-yr old...
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