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    Cracking up

    I know just how you feel, some days all I can do is cry and lash out at everyone and some days are great. This is the other "gift" from ALS!!!
  2. G

    staying home / working outside the home

    I too am in the same situation. I have been on an FMLA from my job and I have to return in a few weeks. I would like to retire early to care for my husband with ALS but I am too young for Medicare. I would have to purchase my own health insurance if I retire early. I have hired private...
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    Time to Diagnosis?

    Our story is similar. My husband was DX in Feb 2016 but the neurologist suspects he had ALS for 3 years. Started with foot drop and weak hand grasps. His PCP thought it was spinal stenosis and carpal tunnel. Needless to say, this was not the case. He is now bedridden and motorized...
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    CALS Roll Call Continued

    I am getting better at using the hoyer lift, my husband said tonight was the best "landing" yet. His voice is very weak but he still has his sense of humor. Our 2 year olf grandson visited today with our daughter and he said "Pap has a boo boo". Family does keep us going especially on days I...
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    CALS Roll Call Continued

    I too considered moving however my PALS is so debilitated that moving seemed like a nightmare. We have converted our diningroom to a hospital room. Since he is bedridden the bathroom is no longer an issue as we use a bedpan. I am looking for a reputable contractor to widen our doorways so his...
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    CALS Roll Call Continued

    I am new to this forum. My husband of 33 years has been diagnosed with ALS Feb 2016. The neurologist thinks he's had it for 3 years. His condition has declined rapidly. He is using the cough assist and the Trilogy machine. He is bedridden and we use a hoyer lift to get to the motorized w/c...
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    New member

    I too am a new member. My husband of 33 years was diagnosed in Feb 2016 but the Dr thinks he has had ALS for 3 years. Since Feb he has declined rapidly. He is mostly bedridden and now cannot or will not eat. I think he is starving and we can't get in to the surgeon to discuss a Peg tube for 2...
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    Hi, I am a new member unfortunately to become a member it means another person has been...

    Hi, I am a new member unfortunately to become a member it means another person has been afflicted with this terrible disease. I am a caregiver to my husband who was diagnosed in Feb 2016 but the neurologist thinks he's had ALS for 3 years. My husband is total care and I find myself "mad" at...
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    Frustrations

    :cry::cry::cry:
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