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Does anyone know how to alleviate shoulder blade & lower back pain? It happens at night when I go to sleep. I'm using pressure alternating air mattress . It doesn't help much. Lateral rotating bed is too expensive and it's not covered by Medicare.

Hi Laurie, After I changed PS, TV and AVAPS options, I can breath so much better now. I really appreciate your help.

Hi, Recently I can't get a good sleep. I wake up 2 - 3 times each night because I am still trying to get used to with Trilogy machine and chin strip for dry mouth. Every time I wake up, my feet and hands are numbed. Any idea? Thanks

Hi, I got the trilogy 100 last month and have been playing with setting. At this moment I still can't get to the setting that makes me breathing comfortable. Can anyone please take a look and let me what's wrong with the setting? I had a hard time to inhale with trilogy. I felt I needed to use...

Has anyone called FDA yet? Why it takes a year to approve this medicine? I will try to call FDA in the morning.

Hi, Have anyone tried this machine to stimulate the muscles? I bought it couple weeks ago and have currently used it for my legs. I did some searches for a word "Stimulator" in this forum and found some old threads back in year 2012. According to PALS, these machines didn't help to keep the...

Thanks for a quick respond, Nikki. I was diagnosed with ALS in February. Then my neurologist sent me to ALS clinic (Cedar Sinai). I was confirmed at the ALS clinic. Now walking becomes more difficult for me. I can't walk far and I don't want to use the wheelchair yet, so I just want to see...

I have a question. Where can I get genetic test for my ALS? I asked my neurologist and he referred me to ALS clinic.