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I have three different hygiene slings that I would like to donate if anyone is in need of one. I can send specifics - brand names and sizes - if interested. It took some time for us to find slings that worked well for us and I would like to just pass them on. I have two that are new and one that...

I'm sitting here and trying to catch up on so many posts and so many stories. I've tried to do this a few times and it's difficult to keep reading. Maybe it's the memories and the reminders of what life was like. My heart goes out to all of you dealing with the disease, either as cals or pals...

My PALS, H (Harry), passed away very early Sunday morning, October 1st. His children and I were with him and we were able to keep him comfortable until the end. I can't write details - I'm struggling to get this out. My heart is so heavy and I can't believe it's over. Hospice had just told us...

Hi All, Sorry for not being on more often. Life has become hectic - as it is for all of you - and I find it difficult to read and/or post much. But you are all in my thoughts daily. I have a question because you continue to be my go-to source of information. I did a search and didn't find an...

Advice please - My husband doesn't have a peg and doesn't want one. He didn't do a lot of research on what to expect when diagnosed with als but knew he didn't want many interventions. He did agree to the trilogy when it came time to have it and is pretty compliant about most things. He's...

My PALS had a fever last night that made him pretty uncomfortable. It responded to ibuprofen and this morning he's feeling much better. This has happened a couple of times before but last night was more unsettling - he was frightened and felt he was dying (his description). I know fevers can...

This is a new development for my PALS. Curious if this is common with FTD or something I should be concerned with? He insisted last night that someone came into the room and threw something on the floor and left. I was upstairs at the time. He is often worried that someone is looking through our...

I just wrote a long post about toileting slings and lost it. Briefly, I need to purchase a sling to use when helping my PALS with toileting and daily transfers. He can no longer help me when moving from chair to chair, chair to bed, or chair to toilet. I purchased two slings and both hurt him...

Checking in on a Wednesday for a change. Was going to start a new thread, looking for advice, but not sure what I would call it. Went to clinic last week and respiration function was surprisingly good - no change in 3 months (71%). But fatigue is more noticeable and confusion continues to...

Not sure if anyone can answer this but I thought I would try. We currently have private insurance through my employment and medicare is my husband's secondary insurance. We have the option of dropping our private coverage for him and making medicare primary. We would also purchase supplemental...