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    als over 40 heredtary?

    I have not heard this and certainly in my family the three ALS cases that we have had were diagnosed at 64, 39 and 56 respectively. Try not to worry too much though, it is far less likely to be hereditary than likely. Have you looked at your family history? Are there any cases that may have...
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    sporadic als turning into familial als

    Hi there, It can happen as it did in our family. My grandmother was the first to have it 20 years ago and then later two cousins died from it. In our case however, the SOD1 gene responsible is a 'low penetrance' gene meaning that most people with the gene do not manifest symptoms of the...
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    Sandy, we need an update

    Genetic Info Hello, Was just reading this and thought that I should say that in my family we have a genetic form of ALS but in this case only 10% of carriers of our mutation of SOD1 actually get the disease. Therefore, it quite easily skips up to 10 generations. Our specialist has said that...
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    FALS Dilemma: should I even try to get pregnant?

    Hello, Your post has prompted me to write as up till now I have been only a lurker. Well what can I say? I am one of those people with a 25% chance of having the gene, eg in the same position as a child of yours is or would be. How has this affected me? In all honesty, I feel immense anger...
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