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I go to the Charcot Marie Tooth clinic at Cedars. The same coordinator runs both clinics and they share some neurologists. They have been great. UCLA neurology I've found to be more of a research dept, less focused on patients. mods: delete if inappropriate since i have CMT not ALS

I have Charcot Marie Tooth 1A which is similar to HNPP (sounds like what you were diagnosed with). There are fairly cheap genetic tests that can discern this. Might be worth taking one to confirm. In these cases the NCV's are waaaay abnormal.