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Agree!! The next year is about my time, who I am now, forever shaped by my PALS, but time to carry on now? I wish all a very peaceful Holiday season, whatever that means for you and yours. Thankful for all of you, we are not alone, sorry we met this way. Best to all !! katie

I am almost 11 mos in and I feel the same! People ask ...are you ok? I say , "I think I am ok. Am I ok? I think I am?" then, almost as suddenly, I blurt out, " Idk, maybe this is all gonna smack me in the face one day? " That"s what I keep thinking anyway. Maybe I am just ok. Aghhhh!!!!

Lenore, When I ready what you say i feel like i have a kindred spirit :) I appreciate your thoughts. Am I crazy/ not crazy.. should i quit my job or stay, overall it is overwhelming ugh. I too have decided I am not moving, yet.. a few more years here, I don't know how to do this life ...

I forgot, my husband had been to the surgeon a month prior as he was having inflammation and irritation around the site, the surgeon tried to increase the diameter around the tube so it could drain better or something. It didnt really work that well, ultimately the gtube was replaced. Maybe it...

My PALS had his replaced due to irritation and infection around the site. It was done in an office with a reclining surgery table and by a general surgeon. The recliner made it possible for him to have his head and chest elevated. The MD numbed the area around the site with injections. My PALS...

ALS creates so many .. I didn't know that would be the last time he would wear a tie, drive the car, leave the house etc etc. 10 months in and I can barely remember all we went through. He is free, we are free and yet it is still awful. It struck me when someone said the 2nd year will be...

My PALS had bulbar onset, symptoms started 5 years ago. He said he felt like he sounded drunk when he spoke . As the year progressed others agreed. In the spring we started going to a voice clinic for botox injections into his vocal chords. There was no resolve. We found ourselves at Mayo...

Ha ha, I am so brave ;)

Thanks ladies, I have laughed, cried, and mourned along with you in so many ways . A thoughtful post describing my journey will be forthcoming. Pulling my thoughts together. I am saddened everytime someone is diagnosed. My name is Katie :)

I never post a thing, I have followed all of you these last few years. My husband passed January 2019. I comment often to my family and friends how,”a handful of women on a forum I follow give me faith, comfort,and sanity!” Thanks for supporting those of us that are out here, but quiet. So...