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  1. M

    Urgent update about undiagnosed neurological disorder

    Thank you everyone for your replies. Apologies for not getting back sooner, but only just have been discharged from hospital. It seems from the initial testing that I have done in hospital that my neurological problems may be caused by ongoing undiagnosed liver disease. I never knew that liver...
  2. M

    Urgent update about undiagnosed neurological disorder

    Apologies to you for posting a new reread but the last one has been closed down (past threads here and here). Thankyou for taking tge time to read my post. Since Saturday evening I have been regurgating everything from from food to tea. This evening my tongue has gone flaccid and it is now...
  3. M

    Complex case. Seeking answers.

    Dear Nikki Hope this message finds you well. Just to let you know that the nerve conduction study and emg came back normal. My neurologist has noted severe muscle weakness, but it is not due to a neuromuscular disorder, but maybe due to a Channelopathy. I am being referred over to Addenbrookes...
  4. M

    Complex case. Seeking answers.

    Today, I have my follow up emg/nerve conduction study. I am very nervous, but also want to find out what may be the cause of my symptoms since the acute flare up in early July. Last week, I managed to get away with my wife for a shirt break, but it was very hard to get my mind off the emg. When...
  5. M

    Complex case. Seeking answers.

    Dear Nikki, thank you for getting back to me. I was actually wondering whether the emg was being repeated, as the earlier one may have not shown anything.
  6. M

    Complex case. Seeking answers.

    Dear Nikki. I just had a quick question. I has a nerve conduction study and emg done at UCLH one week after the acute onset of symptoms I mentioned in July and neither of these tests showed any abnormalities. I am due to have a repeat emg done in 10 ten days time. My worry is that the initial...
  7. M

    Complex case. Seeking answers.

    HI Nikki, thank you for the reply. It has been a really rollercoaster three years, and for a large part until I developed symptoms of muscle weakness in July, my problems were largely cognitive. I am still also under the Mitochondrial diseases unit in London, but genetic testing and muscle...
  8. M

    Complex case. Seeking answers.

    I am a extremely complex case, so I do not know whether anyone can help me. In July this year, I had a acute and rapid onset of muscle weakness and muscle atrophy all over my body. All areas of my body are affected, including, my face, neck, chest, stomach, limbs and even buttocks. The only way...
  9. M

    Worried may have ALS

    Thank you Everyone for your Replies I have a consultation with the psychiatrist on Wednesday. I have also been luck enough that a family member is helping me to go and see a psychotherapist. A couple of weeks ago my GP did raise my daily prescription of seroxat, antidepressant from 10mg to 20...
  10. M

    Worried may have ALS

    Hi Everyone I am very new to this forum, but I thought that writing about my current difficulties on here would be a cathartic experience. From reading previous posts on here, it does not seem that my experience is a unique one. Let me please give you first some background, which will...
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