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  1. M

    Kicked off hospic

    My husband was denied hospice due to a noninvasive ventilator. They instead told me about a bridge to hospice program and palliative care available to him. Same Nurses and Drs run this program. He will be eligible for full hospice when he is ready to stop use of the noninvasive ventilator...
  2. M

    Sweating and ALS

    Hi Laurie, He is completely tube fed and has been maintaining his weight for at least the past 4 months. He will occasionally use a cane, but so far is refusing to use the walker. He has a lot of stiffness and severe spasms in his arms, in the mornings until he takes his muscle relaxers. He...
  3. M

    Sweating and ALS

    My husband has started sweating profusely and his temp is now running at 2 degrees below normal. His ALS started with his speech and swallowing. It is now in his arms and legs. I have to pick him up from the floor or ground, at least once every two weeks because he is stubborn and looses his...
  4. M

    Scared...

    My husband has been having speech issues for almost 10 months and swallowing issues started within the last 9 months. His speech is almost completely unrecognizable, except for a few words here and there, and his recent complaint is feeling congested off and on for the past week. I have heard...
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