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Does anyone experience clenched jaws either as a symptom of the bulbar affect or as a result of taking glychopyrolate. I had a case of a frog in my thoaat and my hospice doctor recommended taking glychpypyrolate to help dissolve it. My jaws are now clenched shut. And ideas if the jaw...

Diane, it's loose/thin, but I can't get it out of my throats because I can't cough. �� Billi

I have another frog in my throat, right below the Adam's apple. I can't cough so it is difficult to dislodge. I had one in the middle of the night last night, but it finally went away this morning -- did I swallow it? Now I have another one in the same place. The suction machine wand doesn't...

Hope you have a quick recovery. Bill

Deb, comforting hugs coming your way. It is a very frightening experience. About 2 months ago we were getting into bed and I wanted something. I tried and tried to get upright and couldn't. I went into panic mode and motioned for Larry to help. He got me upright and we went upstairs to sit...

Do any PALS with a drop foot suffer from swelling of that foot? I no longer walk so it's not from overuse. I also have normal blood pressure, so that's not a contributing factor. I try to always keep it elevated, but that doesn't seem to help. The hospice doctor is scratching her head. It's...

Virtual comforting hugs coming your way. Bill

I experienced hallucinations when I was put on the Scopolamine patch. The pharmacist said it it is a common side effect in older patients. I immediately removed it and now control it with pineapple juice and suction. Hallucinations are not fun. Bill

I ordered a sheepskin a few weeks ago. It arrived but I didn't notice any smell. I, too, have real problems with odors, so Larry washed it just to make sure. I used it for a week, but it didn't help my butt. Our dogs thought it was a treat and started chewing it, so we had to keep them away...

I have bulbar onset and a tube. All my feedings and medications are by tube. I find I am sleeping more now. Could just be the short days and gloomy weather, but I suspect it is the ALS. If you dad is in Northern Europe it could be weather-related. Just a thought. Bill