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  1. Kelster

    People who talk to me like I'm deaf or dim witted.

    People in healthcare and social services who have your diagnosis right in front of them but have failed to educate themselves about the symptoms. I have bulbar onset so I do speak slowly and with increasing difficulty, but give me a break! There are times my two year old grandson demonstrates...
  2. Kelster

    PALS roll call Wednesdays ( or whenever)

    Present and accounted for. Spent a nice weekend with my daughter for her golden birthday. Made it up to my beloved Lake Superior. She and I try to make the trek once a year.
  3. Kelster

    PALS roll call Wednesdays ( or whenever)

    Still hanging in. Beat another round of pneumonia but only with help of my new friends, the hospice workers. They are amazing. I can't believe I fought signing up for it based on the stigma.
  4. Kelster

    Hi Green Queen. Thank you for your nice message. It's very much needed and appreciated.

    Hi Green Queen. Thank you for your nice message. It's very much needed and appreciated.
  5. Kelster

    Hi Margesmn. Yes, I go to the U of M clinic. You?

    Hi Margesmn. Yes, I go to the U of M clinic. You?
  6. Kelster

    PALS roll call Wednesdays ( or whenever)

    My dog died. I have ALS. Feel like a bad country song.
  7. Kelster

    Ugly cry is creeping

    New to this. Diagnosed 1 yr. bulbar onset. VERY ugly crying. You are snot alone!
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