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Hello everybody, I hope you don't mind me writing on here, I didn't really know where to put it. This post is a lot different to my others. I would like to thank you all from the bottom of my heart. Secondly, I would like to apologise. I started getting symptoms nearly a year ago today-...

Does anyone have any idea what other thing that could explain my symptoms? I am desperate not to have ALS (not like its my choice). I have an autoimmune skin disorder, are there any autoimmune diseases that could explain it that wouldn't show up on specialised blood tests? is ALS autoimmune? My...

I just want to know whats wrong with me, I can't cope with the "we will have to wait and see how things progress". Why are my muscles atrophying on my left side, muscles constantly jerking, twitching. legs give way, drop things all the time, constant tremor in arms and legs when I move them or...

Just a question for anyone who has had a baby after having a diagnosis, is a natural birth safe? I have been to lots of private neurologists who have confirmed atrophy and think something is wrong and haven't ruled als out but can't do much more until after baby is born. I'm just worried as...

I've had another neurologist appointment who confirmed atrophy on my left side of bum and thighs (they are very obvious), plus left leg felt shaky for some time before and knees always give way. They can't diagnose until another emg and further tests which I am not having until after I deliver...

Are there any tests such as emg that can be done on the face area

?? Anybody so scared

I know but as you know appointments and diagnosis is a long process I just want to know are these symbols consistent with Bulbar als regardless of my body symptoms. At the rate this is lrpgressing and the fact I wake up feeling like I'm choking and excess saliva comes pouring out my mouth and...

Last post- bulbar Sorry to take up time I do appreciate it Has anyone experienced this with onset Eyelids one night unable to shut kept flickering open, now able to shut but still flicker can feel trembling/fascinations at corner of eyes been over a month Moved to nose can't squinch...

Actually I have been tested by a doctor and have a positive babinski reflex and hyperflexia along with signs of damage to facial muscles as they constantly quiver when I use the orbicularis muscle around my eyes and muscles around my nose and mouth these have not been tested. Along with a lot...