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  • Users: missbelle
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  1. M

    Mom insecure about her speech

    Hi guys. This one might be difficult to answer as it's more a mental thing, but I cannot convince my mom that her having to use an iPad to communicate is fine and normal. She's so insecure about being in public with it. Some back story: mom recently diagnosed/confirmed ALS in October. She...
  2. M

    How to get saliva out of mouth?

    Hi guys. My mom's been having problems with too much saliva building up inside her mouth and not able to get it out. Any tips/tricks for this? She is unable to spit, but can still use her arms and hands. I suggested maybe wiping it out with a cloth or tissues. Open to any other ideas – thank you!
  3. M

    When do they hit you with the prognosis?

    Hey guys. Hope you're all okay! My mom just got confirmation of ALS from a second neurologist last week, and are going to her first ALS clinic day tomorrow. I was wondering when the doctors will tell us how long my mom has? Will they let us know tomorrow at the clinic after doing an assessment...
  4. M

    6 hours of testing?

    Hi guys, my mom is booked in with her specialist this October for 6 hours worth of testing. Any idea what this might entail? After the testing, will they give us a prognosis and some treatment perhaps? I'm wondering what to expect and thinking I should maybe accompany my parents to this...
  5. M

    Finally ready to deal with my mom's diagnosis

    Hi! I posted a couple of months ago when my mom was newly diagnosed. I was in total denial, completely desperate for answers – but have finally come to terms with this. She is still in the process of being tested, in fact in October has 6 hours worth of tests booked with the neurologist – any...
  6. M

    Misdiagnosis possible? Anyone looked into Lyme Disease?

    Guys, I've been reading a TON of articles about how so many people have been misdiagnosed with ALS but actually had Lyme Disease! Does anyone have any experience with this? Does anyone in Ontario know where to get tested for it properly? Apparently 50% of people bitten by a tick don't even...
  7. M

    Mom "probably" has ALS, according to specialist

    Hi everyone. I'm new here. My mom was just told on Friday that she "probably" has ALS (just in time for our fun mother's day weekend planned together, how wonderful life can be!) She's been having difficulty speaking for about 2 or 3 months now. Difficulty swallowing as well. No other symptoms...
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