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  1. M

    Mom insecure about her speech

    Firefighter58, we are so close! My mom is going to the clinic in London, and had the second opinion done at McMaster. I wish the voices for the text-to-speech were a bit better. They are difficult to understand sometimes, but you're right, it does do the trick. I hope she'll become more...
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    Mom insecure about her speech

    Thanks so much, everyone!!!
  3. M

    Mom insecure about her speech

    Hi guys. This one might be difficult to answer as it's more a mental thing, but I cannot convince my mom that her having to use an iPad to communicate is fine and normal. She's so insecure about being in public with it. Some back story: mom recently diagnosed/confirmed ALS in October. She...
  4. M

    How to get saliva out of mouth?

    PS. If anyone has any suggestions for an affordable, portable suction machine, please feel free to share!
  5. M

    How to get saliva out of mouth?

    Thanks so much! Paper towel should work for now, but I'll look into a machine today.
  6. M

    How to get saliva out of mouth?

    Hi guys. My mom's been having problems with too much saliva building up inside her mouth and not able to get it out. Any tips/tricks for this? She is unable to spit, but can still use her arms and hands. I suggested maybe wiping it out with a cloth or tissues. Open to any other ideas – thank you!
  7. M

    Diagosed with Possible ALS Yesterday

    I'm so sorry to hear this, Kelly. Very similar to my mom's story. We finally got a second opinion and had the "possible" confirmed just a few weeks ago. Then, her first clinic a few days past that. There was some progression and she has very minor weakness in her left side. We are hoping it...
  8. M

    A post for women with bulbar

    Kimmy, I'm so sorry. My mom also has bulbar onset. I was just reading about Deanna yesterday as well. If you have questions, there is a number to call and a live chat. I found them very helpful. It's definitely not a cure, but the supplements seems to boost energy in people taking it, if nothing...
  9. M

    When do they hit you with the prognosis?

    Thank you so much for sharing your story. I am so sorry to hear about your mom. But glad to hear she left peacefully while at home, that must be comforting at least. Sending you hugs!
  10. M

    When do they hit you with the prognosis?

    I am glad to hear it! Thank you!
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