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Hi Scott, I am so sorry to hear of your diagnosis. I know firsthand how devastating it is. My husband was diagnosed in 2016 at the age of 36. Our daughter had just turned 1 and our son was 5. I can completely empathize with how you and your wife are feeling. I wanted to offer you some helpful...

I completely disagree too. I will never stop fighting until a treatment or cure is found. My husband passed away on January 4, 2021 and I will continue to fight as long as I am on this earth!

Hi. It’s been several years since I’ve posted here. My loving husband, Darin, passed away on January 4, 2021 at the age of 40. He battled ALS for 4 years and 8 months. Our children are now almost 6 and 10.

Hi Kim, Thanks, for the info. He can go into the pool but not in the deep end. He doesn't have enough strength to swim so I just bought him a life jacket that works, but is annoying to him. I'm going to research some adaptive equipment and look into getting the aqua shoes. Thanks!

Thanks so much ladies for your advice and suggestions. Your input is a huge help :)

Thank you Nikki. I think he might have problems picking up his foot at times too.

Hi, I've heard a lot about not letting your PALS fall, that after every fall it speeds up progression. I need to know at what point should an assistive device be used? (cane, walking stick). My PALS tripped over the corner of the area rug that was sticking up this morning and crashed to the...

Thanks Lenore! I'm glad your husband is a slow progressor too. Makes things a tiny bit easier.

Thank you all! This disease is so devastating. I can only accept it and make the best of it. Some days SUCK, but others are pretty good. I know we have a long road ahead of us so I'm really trying to enjoy everything we are still able to do. I think of you all often. -Nikki

Hi Everyone, It's been 13 month's since my husband's diagnosis. It's been a really long time since I've posted on here. I just wanted to update everyone on how everything is going, but first I would like to THANK ALL OF YOU :) You were my support system with your encouraging words of wisdom...