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  1. Lkaibel

    Turning The Page

    As a few here would know, I came to this site in 2016, knowing the truth in my soul about my now deceased husband, Brian but hoping against hope it was not so. Quickly, we learned it was ALS and a lot of wonderful people here virtually walked that hard path with me for the nearly three years...
  2. Lkaibel

    Dean Has Covid…

    My Dean is in the later stages of ALS. He does not walk and has lost most intelligible speaking ability. He still eats but probably should be moving to purée, and will not as swallowing has gotten more difficult. He’s fought for sores for years, and picked up a case of C Diff that has never...
  3. Lkaibel

    Memories Still

    I’ve sold my house. I close on 6/1. I am going to rent an apartment for a year or two and then just see if I even care to dive back into owning. D. is doing reasonably well. No substantial progression this past year though his speech is somewhat worse, he has actually gained almost 10 pounds...
  4. Lkaibel

    A Forum Two in One…

    I am unusual here in the Forum I think, at least for someone not experiencing being a caregiver in a family with inherited ALS. In June of 2016, my late husband was diagnosed with ALS. The wonderful people right here on this forum advised me in his diagnostic process, helped me brace for what...
  5. Lkaibel

    Tobii Questions

    Greetings! I have a question regarding Tobii, maybe a few. Are there any that work with the MAC? What is the best equipment/software for 100% hands free, eye gaze operation only for e-mail and Internet? I am actually both a former CALS for my late husband (3/13/19) and very close to a current...
  6. Lkaibel

    Compassion and Choices in ALS

    Hello, Some of you know me. My late husband, Brian was Dx’d on 6/30/2016 and passed on 3/13/2019. He had limb onset ALS and we were fortunate to have some good time during our last years together and for him to be able to remain at home. Brian was a strong supporter of Physician Aid in Dying...
  7. Lkaibel

    Haunted

    The second anniversary of Brian’s death, 3/13/2021 came and went. March was a surprisingly wretched month for me. I drank a little too much wine, ate a few too many deserts and bust out crying telling the housemate that Brian died motionless from the neck down on the floor he had laid 5 years...
  8. Lkaibel

    ALS Activism for Former CALS

    Today I heard it said that if you stay involved in ALS causes, you were not “moving on”, you still had ALS “in your head” and it was not good for a new partner you may have after the loss of a PALS. I strongly disagree! People are suffering from ALS now! CALS need support from those who...
  9. Lkaibel

    20 Months Later

    In 12 days, it will be months since Brian passed. It feels like a long time ago and like yesterday all at once. I may or may not have stopped in here about six weeks ago to tell the story of his ashes, I can’t recall. I finally got them back from the University of Minnesota anatomy bequest...
  10. Lkaibel

    Thinking of You All

    My husband, Brian passed from ALS on 3/13/19. On the very day I’d taken off last month to set aside some time to remember him and us, it seemed liked Covid exploded in the news. That weekend, I went to get my car worked on and it hit me that everyone was in gloves and the usual donuts at the...
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