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As a few here would know, I came to this site in 2016, knowing the truth in my soul about my now deceased husband, Brian but hoping against hope it was not so. Quickly, we learned it was ALS and a lot of wonderful people here virtually walked that hard path with me for the nearly three years...

Laurie is wonderful at sorting these things out, and she is so right about muscle wasting issues. Evaluate what you preview yes, but I think your motor neurons are in the clear. At this stage of symptoms I believe it’s virtually impossible that you’d have normal EMG’s if you had ALS.

That is very true. I do need to be his health care advocate for sure, particularly when I am NOT there, but it’s worth it and it is great to be the partner and not the caregiver. I do feed him and I do help with sone things while I am there, but not in the same universe with all I did for Brian.

Still standing! It’s been a long time. D. Is still with us, slowly progressing but slowly. Breathing remains okay, can still swallow, hands weakening. He was Dx’d in May of 2015, and still here. Did not enter long term care until the Fall of 2020. I visit from Minnesota to Washington every 3-4...

Dean has apparently turned a corner and is much improved. I did battle for a cough assist for him, finally getting the Director of RT himself from Virginia Mason over to BBH to see Dean and set it up. At this point in my life, between my late mother and two husbands I feel ready to write a...

Love is brave, not me ❤️🙂

Dean has okay 02 sats (93%), but is still using some oxygen to feel more comfortable. Between that and cough syrup and fever in check I think he is doing okay Covid wise. One day, one hour at a time. If you want my true sense of what will happen here, I think he recovers from Covid, but the...

Fever moves between 101-102, coughing and achy but was stable today/yesterday thanks everyone. Your thoughts help, truly.

My Dean is in the later stages of ALS. He does not walk and has lost most intelligible speaking ability. He still eats but probably should be moving to purée, and will not as swallowing has gotten more difficult. He’s fought for sores for years, and picked up a case of C Diff that has never...

I’ve sold my house. I close on 6/1. I am going to rent an apartment for a year or two and then just see if I even care to dive back into owning. D. is doing reasonably well. No substantial progression this past year though his speech is somewhat worse, he has actually gained almost 10 pounds...