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My mom had an appointment at the clinic today and I wasn't able to go. My Aunt sent me the page with her stats on it but I don't understand some of the results and mom won't be strong enough to fill me in until tomorrow. So if anyone can interpret I would appreciate it. The results of her...

It's almost Christmas, I went down to moms as I usually do and once I got her fed and set with her eye gaze machine , I went into her room and got started wrapping the presents that she bought for people. It took me so long and there were many tears, watching my hands as I wrapped what would...

Sometimes I just like to talk about normal things with you guys too....okay so this isn't normal but it was so hilariously awful that I figured it would give everyone a giggle I was going to see my mom today, I am at exit 19 and she is in between exits 10 an 11. Takes maybe 40-45 minutes to get...

My mom is the one with ALS. 2016 has sucked bad , many horrible illnesses, injuries, surgeries and deaths in the family. I want to just snuggle up to my mom (PALS) and cry but I don't want to add any stress to her because she would know her situation is adding to my sadness. If it were you...

Have any of you thought about what you will do after your PALS is gone? What will fill your time? What will your life look like? What do you WANT it to look like? I had planned on spending the days I normally spend taking care of my mom and using them to hang out with my Gram, unfortunately...

Still progressively getting worse, nearly impossible to understand her. Sometimes this makes us laugh hysterically and sometimes it makes us cry. We laugh because its like a game of "telephone", she held up her finger and was trying to tell me there was a hair on her finger and I thought she was...

https://www.scientificamerican.com/article/wireless-brain-implant-allows-ldquo-locked-in-rdquo-woman-to-communicate/?WT.mc_id=SA_FB_MB_NEWS

CBD oil is legal in NYS for ALS but I can't find any reliable websites that tell me what the benefits are for people with ALS, does anyone know?

My mom has trouble getting to her drink now, getting it on and off of the end table is nearly impossible , I was looking around and found this, I am going to order it for her, with tall sports bottle and long straw I'm hoping that she won't have to lift her drink at all...

So, seriously, how much can one person take before they snap?? You all know this weird "curse" as I call it this year with all of the serious health issues in many different family members and then I had brain surgery a couple weeks ago and woke up to find out my Gram died. Well now we are in...