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    Radicava question

    A pic line can stay in place for a long with proper care. My husband had his for a year and a half and it was still in place.
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    transfer lifts help

    I lifted my husband for the duration of his Illness with no hoyer. No one could believe that I did because he was bigger than me, but I believe it’s because we had figured out a good grip that made it easier for both of us. I would bend down to where I could put his arms over my shoulders...
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    21 year old caregiver

    First off, Joe, I’m sorry about your Dad, and the loss of your Mom. As to your question as to how you will be able to handle it as it gets harder- I can tell you, you’ll just do it. You are already doing so much, and I know its overwhelming, but you’ll get through it. I wonder if your Dad...
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    Paperwork. Grr...

    Just when I think I’m done there’s more....
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    Riluzole/ Radicava discussion...

    My husband was on Radicava for almost 2 years before he passed. He thought it helped him; he felt a little better during cycles, even near the end. We did infusions at home, while watching tv together so it wasn’t a big time waste, since we’d be doing that anyway.
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    Ford Econoline full sized van

    Selling 2000 Ford Econoline with side entry Braun Vangater 2 lift, transfer drivers seat, hand controls. Super low mileage 29,500. Good condition, new tires. Located in Southern California. I’d be happy for this to go to another family affected by ALS, so if you’re in the market for a van...
  7. EE97CEE9-D6AD-4578-90FB-9D810185375A.jpeg

    EE97CEE9-D6AD-4578-90FB-9D810185375A.jpeg

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    Effervescent N-Acetylcysteine, does it work for dry mouth?

    I have two boxes that I would be happy to send to you. I bought them for my husband but he only used them for a week or so. I think they were about $40 so it’s worth a try? They aren’t being used here.
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    warning, keep breathing equipment clean!

    We just got a Soclean machine and are happy with it; it’s easier for me cleaning wise and PALS says it feels cleaner when he breathes too
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    Repeated denials for in home services

    We know we don’t have any caregiving covered, we just want the PT we have been getting and weekly nursing visits for wellness check so everything is not on me.. It’s so insane to me that insurance companies can force a caregiver to do everything. Their authorization team is going directly...
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