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  1. J

    Feeling Like a Forum Refugee

    Thank you so much Nikki for your kind response; and great idea on starting a Facebook group... Am I allowed to curse you later ��? Ha! I can only imagine the stink shows to play out, but if I can contribute anything from navigaying this process, I have to "lean in" & say yes when & where I can...
  2. J

    Feeling Like a Forum Refugee

    I was fast tracked on this medical journey 1/28/16 after finally seeing a doctor for my chronic nasal regurgitation... turns out it's a lot more than a quirk or nuisance! Now I am on a puréed diet because I have neurogenic dsyphagia with atrophy, dysphonia & dysarthria (among other things). For...
  3. J

    Anyone tried this?

    No, but thanks for the info. I'm going to try while there is $10 of supply of 6 & free shipping. If I like it I'll contact them and ask them to consider offering medical discounts.
  4. J

    ALS and heart rate

    Jules here, in the diagnostic phase. Symptoms of MND impact my "new normal" as much as my rapid heartbeat does. At my initial appointment 1/28/16 I was diagnosed with Dysphagia & Dysphonia. My resting heart rate of 139 was noted but not discussed, so I was unaware of the problem. The next day I...
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