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I have posted here before, but not in awhile. I have a question. For an ALS patient, my wife, whom I care for at home. What is best: pull-ups or regular diapers? SHe is on hospice care and I can get diapers free. But pull-ups seem easier at least to put on. I just can't seem to get the hang of...

Hello all - I am looking for a bedside table (hospital type)...but it should be a swing-away type, so the ALS patient can push it away as needed. Right now I have to give my PALS their IPad, cord, face mask, and hospital bed remote control all the time after she goes to the restroom. She has...

Hello: My wife now has a hospital bed at home (made by Drive). It has a pink, slippery cover, by the looks. I am trying to get bed sheets (fitted) to say on the bed, and they keep sliding off of the top! I have even tried sheet fasteners. Any suggestions? Thanks, Scott

I am interested in a First Alert-like device so that my PALS can use it in the event I am away. However she has Bulbar ALS and cannot speak. I see most of these devices are geared around pressing a button and speaking with a rep (which my PALS cannot do). What system would you all recommend that...

Me and my PALS live in FL. I hired a home health agency to send someone for 2 hrs on days I work (once or twice a week at the most). I have found on most occasions they either don't show up or are late. This is ridiculous. Is this common with home health aides? Most of them have unreliable cars...

Well it's time to vent again. It seems like there is some appointment of some kind every day. Thank God that I only work occasionally. I don't know how you people with FT jobs do it all. My PALS keeps FB messaging me for this and that. I can barely take a shower or eat some days. Then I have my...

I have been experiencing weird interactions with my family, both for those that live here with the PALS and me (CALS), and outside family members. We are Christians, and it seems that no one understands that I need a break. It seems so odd. Thank God I only work once a week and I have a lot of...

I'm wondering how many caregivers on this forum have experienced criticism from family members regarding your caregiving? My PALS' best friend emailed a family member and complained. And my family member believed them! What is worse, my PALS also complained about me not being nice enough. While...

My wife has Bulbar ALS, diagnosed since Oct. 2016. Some background prior to her diagnosis is necessary to get context: My wife, myself, and our now 19 yo daughter moved from RI to FL to care for my 91 year old Dad in July 2013. We moved in with him. He was very demanding and...

Hello: My wife has been recently diagnosed with Bulbar ALS with FTD dementia. She landed in a hospital out of state, and we would like to know the best way to proceed regarding facilities in her home state of FL best capable of dealing with this disease. Any ideas? Thanks. Scott