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Hi was just wanted to say thank you to all the responses I got when I asked a few questions regarding my Dad. He passed away Thursday. ALS is the most horrible disease I have even encountered. I was with him every step of the way and now he is not suffering anymore. I am 50 years old and my dad...

Thank you for thinking of me

Hi all. Doing well, just one more question. Dad is using his trilogy vent mask with oxygen attached and alternating with his cough machine. He does this all day long. We give him anxiety medicine and he sleeps a little then goes right back to it. It is very tiring for Dad and me. I tried giving...

Ok. I think Dad is declining. He is barely eating anything. Maybe a few spoon fulls of soup for lunch and about the same for dinner. Has loose bowels now all the time. really short of breath. Hospice brought out oxygen last night. So now on oxygen during the day and his bipap machine at night...

He attitude is great, very positive. Just did not want the PEG. He and his doc discussed it and that was that. I do shakes for him all the time he drinks a little bit and then complains he is full. When he is awake he goes outside and rides around in his wheelchair. I take him out to the library...

First time here. I am the caregiver to my Dad. He has been almost 2 years fighting ALS. He is losing so much weight. Now at 140 pounds at 6 feet. No peg. Only soft foods and can stand for a second then onto his wheelchair. Getting a new bed soon and getting a computer so he can communicate with...