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    BetsyB's post about trach

    I am still breathing fine but my progression has been fast and I am doing my advance directive now and trying to plan a fast, cheap, and comfortable death.Thank you all! B
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    BetsyB's post about trach

    Sorry to change the subject somewhat but I hope to get a trach but no vent. Does this ever make sense? I thought this way because:1. I cannot get benefits to pay for a night caregiver.2. it is illegal to detach a vent here in Israel. 3. I felt panic when I tried on a bipap mask once. So if I...
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    Dental Care

    My caregiver brushes my teeth wit baking soda.good.
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    swallowing rilutek with difficulty

    Ok guys,I hear you.Will discuss with nurse. Carry on, Betsy
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    swallowing rilutek with difficulty

    hello all. i have limb onset, can still eat most things, do not want a PEG yet because I am plump and not losing weight. but i cannot swallow pills. so my caregiver grinds up my neudexta and gives it to me with applesauce and that is fine. but if we try the same thing with rilutek, it makes my...
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    Best speech/communication device?

    I've lost movement in my hands recently so I switched to a fancy hi tech head mouse from Quha Zono;it has a gyroscope inside so it is good to use anywhere . I point mouse at an on screen keyboard from Click 2 Speak. Will transition easily to eye gaze soon.
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    Turtles and constipation

    For people who can still swallow, or with peg, I recommend taking 1/2 glass of water first thing every morning, with 1 tablespoon of olive oil and one quarter lemon. Warm water is best. This concoction causes the secretion of bile from the gallbladder, which lubricates the entire intestine. It...
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    Stress triggering ALS?

    anyone here have the neurologists tell them that extreme stress in their life may have caused or triggered their ALS? I would like to know the name of any neurologists who have said that. Someone "on this forum" wrote that some time ago, but I cannot find the post. Kind regards to all, Betsy
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    Medical expert witness on ALS?

    Does anyone here know of an ALS specialist neurologist who works as an expert witness? It did not matter where they are. I'm also interested in learning of any lawsuits that claim certain events or exposures caused/triggered ALS. Even if they were not successful, I would like to know if any such...
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    brainstorm may offer stem cell treatment for fee

    Patient Access to NurOwn® - BrainStorm
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