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Opinions Please
My mom passed away this past Thursday 04/13/2017 she went to Mayo in Fl. and participated in the bio marker research. She was tested and had the C9 gene her sister passed away 3 years ago with FTD. My mom only lasted a year after her diagnosis. She donated her brain and spinal cord. So I'm told...- Rellis76
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- brain brother diagnosis ftd research treatment
- Replies: 9
- Forum: Familial ALS (FALS)
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Mom passed peacefully
My mom was diagnosed on 04/02/2016 and on that date the only problems she had Way her right arm had weakness. She progressed very aggressively. To being completely paralyzed with in 6-8 months. She passed away last Thursday 04/13/2017 peacefully in her sleep little over a year after her...- Rellis76
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- arm caretakers diagnosed diagnosis eye eye gaze father paralyzed problems sleep weakness
- Replies: 11
- Forum: In memory of
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Mom just diagnosed
My mom was diagnosed this past Saturday 04/02/2016 with ALS. This is her story On October of 2015 it was discovered she had thyroid cancer and her thyroid was removed and afterwards was treated with iodine radiation a low dose they were successful in getting all the cancer when she went into...- Rellis76
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- als arm back brain diagnose diagnosed emg fingers foot immediately improvement lift mri neurologist scared second opinion slurred speech speech story surgery symptoms tests therapy tongue voice
- Replies: 10
- Forum: Newly diagnosed