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  • Users: patoyeah
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  1. P

    Tooth Brush for Bulbar Issues

    Dental: Suction Toothbrush I have not used this, but might help - Pat
  2. P

    Happy Holidays

    Happy Holidays cals n pals. Stay warm, Pat
  3. P

    Condom Catheter

    I am fully paralyzed, in bed 24 / 7 just got a condom catheter, so i dont drive my wife crazy for those experienced with these, how did it work out for u? and did it ever cause a Urinary Track Infection? Thanks, Pat
  4. P

    Ted Harada passed away

    Sorry for him and his family, and all they went through. No obituary yet.
  5. P

    Tears burn like acid

    Title should be: Tears burn like acid ( dont see a way to edit the title ) There is an old thread at TDI discussing this briefly. Any remedies for this? Its an als thing Any explanations why some pals get this? Thanks, Pat
  6. P

    On Bipap 24 / 7, how to wash hair and dental care?

    Morning, I am on bipap continuously. Usually via nasal pillows, though I have been having trouble with my nostrils getting sore and getting cut up. May need to start wearing masks? Using bipap 24 / 7, I often seem to struggle now, being off the bipap, even for a couple minutes. How to...
  7. P

    They're back, ... NP001

    September 22, 2016 ? Neuraltus Pharmaceuticals, Inc. This stuff helped some heroic pals, a few years ago. Then the company confusingly and mysteriously stopped progressing the trial This may be one of the most promising treatments around, but can this outfit be relied on? May work best...
  8. P

    es fonny, e scary

    https://www.youtube.com/watch?v=6MubunsD-7g
  9. P

    Approved drug Inhibits NLRP3, any use for ALS?

    Menstrual Pain Reliever Drug Mefenamic Acid Shows Promise As Alzheimer's Disease Treatment : HEALTH : Tech Times
  10. P

    Preparations for EOL.... do over

    Do over, cause when the servers here were changed, the original thread was lost. Some helpful info was in that thread. Some ideas like not removing the deceased from any accounts for 6 months, I am not sure why; but I wanted to show it me cals. I did a Will and POA when I was diagnosed, a...
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