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My honey decided it was time to go on hospice care last week, All was going well, a few new meds to help with the respiratory distress and a nurse a phone call away! Very nice until Sunday morning, I realized his lips had swollen over night till they looked like Mik Jaggars' lips, One of his...

Just a note about the swollen leg, my dear husband had knee pain for 6 months before the Dr. figured out that he had a blood clot between his knee and hip. they said it was from not getting around as much as he needed to. Of course with ALS just getting up to go to the bathroom at that time was...

Not sure I can elaborate on all the differences, but a big difference is once you are on hospice they give palliative care. No new equipment even if needed, they make you as comfortable as possible and go from there, well that is how it is in Arkansas. We just recently got home health for my...

My special PAL is now unable to stand and pivot for transferring, he is always either in the hospital bed or PWC, we are exclusively using a manual Hoyer lift with a split sling for transfers. We don't have a van to take him anywhere, we are totally at the mercy of the local non-emergancy...

Thanks again for the ideas, has anyone tried the "shower bay ". Portable shower? I found one in a loan closet listing, just wondering how well it might work?

Thank you all for sharing your thoughts and experiences, yes this disease keeps us on our toes, ever changing, and challenging us to think outside of our comfort zone, , truly we are candidates for think tanks, , after hearing from you all I feel better equipped to try a few new things, I will...

'Yes Neal has a shower chair, and with assistance we get his legs into the tub and then he can have a shower, but he is loosing what strength he has in his legs. Last night after his shower when we went to get him up his left leg buckled and he was going down, so I made sure he didn't fall...

So we are having great difficulty figuring out a safe way for my honey to shower, he is able to ambulate with his rollater/walker, but has a real difficulty getting up if he is sitting, in the shower we have a shower chair and it always is a struggle for him to get up. We cant afford to remodel...

Just checking in on this Wednesday, We went for Neals check up at the ALS clinic, They say he is a slow progression, but things seem to be changing so quickly from my perspective. This last weekend we moved a hospital bed in our room, i think for now it's going to work for him, just seeing...

My Pal is having difficulty getting up out of bed. We currently have a bed that will elevate the head, so we are using that feature to assist in getting up. Our week has been good, trying to stave off the gout, have had a couple of good weeks. Hope everyone keeps up good spirits and rest assured...