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Hello, I am sorry to hear about the frustrating and difficult times you are having. I have not had it quite as bad, but there was a time when one doctor thought I had ALS, and another thought I had Multifocal Motor Neuropathy. It turned out to be ALS in the end. Progressive EMGs over a 4-5...

Welcome to the forum, Margaret. I just joined myself. Like you, I am still capable of doing many things on my own, but I am afraid those days may be coming to an end. You are right--it is difficult living one day at a time. I am so glad you have such loving and supportive people around...

Thanks for all your kind thoughts. If anyone is interested in clinical trials, there is one using a drug called Tirasemtiv that many people seem to be excited about. Let me know if you need any more info.

I am a 64 year old male and I was diagnosed with ALS in January 2016. My primary symptoms have been a progressive weakness in my arms. While the EMG says the legs are also weakening, I do not yet feel that. I also at present do not have any "upper motor neuron" symptoms. I have tried to get...

Hello there, My twitching started in the arms, and I also had progressive arm weakness. As of now, I don't really have symptoms either in my legs or above the neck. One thing I've found out is that these neurological disorders are very complicated. There are a lot of variations. Mine...