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  1. C

    I really appreciate you even writing to me. I want to let you know that. Even the fact that you...

    I really appreciate you even writing to me. I want to let you know that. Even the fact that you noticed I have been on. I do not understand why my muscles are disappearing and it is scary. And the trouble breathing is even scarier. But I am doing my best. I just am losing functionality and I...
  2. C

    I know. But I have lost muscle in my foot to the point were it is deformed and my arm, shoulder...

    I know. But I have lost muscle in my foot to the point were it is deformed and my arm, shoulder and calf as well. My GP was actually shocked when he saw me again. Everyone thought this was in my head but the atrophy is very very visable at this point. I can't use my right foot at all. Now...
  3. C

    Weakness in right leg

    Everyone is prob sick of me at this point, but I am just struggling with what is happening to me. Is there a forum for people that have been told possible als? I could use people to talk to right now, especially about the things happening physically. Thanks for any info.
  4. C

    Weakness in right leg

    Thanks. I am still waiting for the call to get scheduled. This is a hard process and I am trying to be strong and care for my kids even as my body fails. I have no one to help and my mom, who is 700 miles away, keeps saying its not going to be that even though what I have been told. I am really...
  5. C

    Weakness in right leg

    So after weeks of these symptoms and a "clean" emg, I woke up and was unable to lift things with my right hand and tripping with my leg with spasms and twitching now in both kegs. Went back to the Neuro, my reflexes are still hyper and positive jaw jerk and now atrophy in my forearm as well. The...
  6. C

    Weakness in right leg

    Has anyone experienced this? I also talked to my pcp who was annoyed that they did not poke my bulbar region! Apparently my tongue is twitching (I did not even know this) and my first complaint when all this started was my hoarse voice and swallowing, choking. I had no idea that was...
  7. C

    Weakness in right leg

    Emg So I had my EMG and they poked me in my leg and arm and said it was normal. BUT the neuro went on to tell me that now all my reflexes are brisk and I have jaw jerk! (Which he did not test me for but the Neuro doing the EMG did) I have trouble swallowing and there is gurgling in my...
  8. C

    Weakness in right leg

    My emg is next week but I am struggling even more. I cannot go on my tip toes on that rght leg and the stupid thing doesn't stop twitching. I get some weird twitches in my stomach and lips but remains constant in my leg. My foot is constantly snapping and from what I read it can be due to muscle...
  9. C

    I am still walking. Well limping really. I can't hold balance on my rt foot at all. If I turn...

    I am still walking. Well limping really. I can't hold balance on my rt foot at all. If I turn too quick, I lose my balance. I can't even hold my son anymore. Its heartbreaking.
  10. C

    It is on May 11th. With the weakness and muscle missing and twitching in that one leg....its...

    It is on May 11th. With the weakness and muscle missing and twitching in that one leg....its hard to think anything else. And now hammer toes on the same foot. I don't know when that happened but I never had them before. Everything I read said that when you lose the muscles in your foot, it can...
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