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    Make no big decisions for 12 months?

    I had heard that also. My husband passed away in July of 2016 and I sold my house and moved back to Kentucky to be close to my family in January of 2017. I also adopted a Chihuahua from a shelter in South Carolina in September of 2016 because I felt like I had no purpose and he gave me a reason...
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    Should I be on a BiPap?

    I don't really have any advice for you. Tom never could get used to the bi-pap. I felt like he never really gave it a chance as he never tried using it with any consistency. I have heard though that it does take a while to get used to it
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    Fight mode

    Tracy, I felt the same way. It seemed like nothing ever went smoothly and no one ever did what they were supposed to do when they were supposed to do it. Frustrating, to say the least
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    Staying positive but definetly overwhelmed

    I know exactly how you feel. My husband, Tom, would not use his bi-pap. He had a feeding tube but would not let me feed him enough to sustain life. It is very hard to see someone you love getting weaker and weaker, especially when they don't seem to be doing the things that could at least help...
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    Sleep

    I don't feel like I want to sleep all the time but I have a hard time getting up in the morning. I was always an early riser. I would get up early, read my paper and drink my coffee and then get about my day. Now, I get up, go sit in the recliner, take a little nap, read a little paper, take...
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    How can I not be a monster during the night?

    I think it is normal to feel that irritation. I did not have it so much with Tom but then the time I had to deal with being woken in the night was very short...only about a week before he passed away. I do, however, remember going to visit with my mother when she had Alzheimer's and feeling very...
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    Interpreting the medical specialists

    When Tom began having hallucinations I thought that the end might be near. I was still surprised the day that it happened because I had this picture in my head that he would be having difficulty breathing and he would be in bed and hospice would be giving him morphine. While he was having a "bad...
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    Respiratory Failure 101

    My husband was on hospice care for only a very short time. He requested about a month before he died for me to make his funeral arrangements and to get him on hospice so I am sure he knew his time was short. He had bi-pap but would not use it. He also had a feeding tube but could not or would...
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    Appointment cancelled

    If you want to see the doctor's notes you will need to order your record...you can do that on the MUSC patient portal. The first 25 pages are free and there is a nominal fee for each page after that. I used to order one whenever Tom had a visit because many times there would be things in the...
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    Bob is at peace now

    Good for you! My father-in-law wanted "a party with an open bar" when he passed away. So, my mother-in-law waited until his birthday and threw him a party. What a wonderful way to honor Bob's wishes. So sorry for your loss. My husband, Tom, was diagnosed in February and passed away in July so...
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