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  1. Z

    hereditary neuralgic amyotrophy

    That's not 200 cases, that is 200 families. And these things are a lot more common than you'd think, specially because people like me get kicked to the curb and not included in any data. Example...
  2. Z

    hereditary neuralgic amyotrophy

    >From what I've read it's non fatal illness that usually gets better in 2 years without any treatment. Most regain 70-90% of their strength back, if not then they look at treatment. All my other family member progressed to respiratory failure and died, its just father's cousin was most recent...
  3. Z

    hereditary neuralgic amyotrophy

    Rantish first post: I have heriditary neuralgic amyotrophy (Parsonage-Turner). My father, Grandmother, Grandmother's brothers, great grandmother-all had this. My father's first cousin recently died of respiratory failure secondary to the disease. Absolutely no one treats it or has any interest...
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