That's not 200 cases, that is 200 families. And these things are a lot more common than you'd think, specially because people like me get kicked to the curb and not included in any data. Example...
>From what I've read it's non fatal illness that usually gets better in 2 years without any treatment. Most regain 70-90% of their strength back, if not then they look at treatment.
All my other family member progressed to respiratory failure and died, its just father's cousin was most recent...
Rantish first post: I have heriditary neuralgic amyotrophy (Parsonage-Turner). My father, Grandmother, Grandmother's brothers, great grandmother-all had this. My father's first cousin recently died of respiratory failure secondary to the disease.
Absolutely no one treats it or has any interest...