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    Joel is home

    *removed*
  2. T

    I just read the lithium study

    lol Jeff Good luck!
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    Not ALS- rather some form of MNN or MND?

    Lola, First off, I'm sorry about your father. ANY motor-neuron disease is dreaded. This may help explain MND. Different types of MND There are four main types of MND, each affecting people in different ways. There can be a great deal of overlap between all of these forms, so, while it is...
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    My brother.....

    Tim's behavior Lorie, Your brother's flare ups are inexcusable, especially when he disrespects his mother the way you described. Sure, ALS is a crappy deal in life, but it gives no one the right to disregard our loved one's (questionable) feelings. You know, if Tim acts this way all the...
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    My brother.....

    Lorie, sweetheart, you have got to slow down. You won't be any good to anyone if you get physically ill, especially Timothy. You mentioned in a previous post that Tim's progression was slow. Praise the Lord for that! Look, the legal health issues and burial arrangements are not necessary...
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    My brother.....

    Linda, I get SO damned mad at doctors that cause unnecessary grief. They have no knowledge of how long a PALS will survive. As several people have noted, ALS is different for every patient. I pray that Jimmy will plateau and have many years to celebrate his birthdays. My neurologist told me...
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    Peg tube replacement

    Hi Sass, Funny you should ask.. my carer has been bugging me to ask the same question on a forum. We normally have to change mine about every 2-4 months. Mine usually needs changing when the balloon gets low on water, as the tube sticks out further. I can always tell when it needs changing...
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