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  • Users: MyNexus2U
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  1. M

    Bringing my next door neighbor to tears

    To those people that know me are well aware that there is no road that I will not take for a good laugh. I have been passing along Chally stories for weeks. I entertain my family and friends on Facebook with little clips from my life and experiences with ALS. There is nothing sacred with me...
    • MyNexus2U
    • Thread
    • als back chair crying family feeding feeding tube kids life manual pain peg running story work
    • Replies: 4
    • Forum: Comedy, humour and jokes
  2. M

    Confirmed

    Second opinion confirmed my suspicions of ALS today. It has been a long frustrating road at times. My situation was a little unique because of financial restraints and getting to the right kind of neurologist who specializes in neuromuscular disease. The wonderful and kind people in this...
    • MyNexus2U
    • Thread
    • advice als children clinic diagnosis disability financial life neurologist second opinion support veteran
    • Replies: 9
    • Forum: Newly diagnosed
  3. M

    second torpedo

    It is probably my fault. Like the rest of you know if you get behind it can be a struggle to catch up. We are struggling with bathing, and getting me up if I fall. It is a lot harder than it should be but we are still getting by. I can still make transfers and walk short distances, but when...
    • MyNexus2U
    • Thread
    • age als back breathing chair children choking clinic cramps dad data depression diagnosis emg food insurance mistake mnd peg possible a sleep support swallowing symptoms tests transfers vent
    • Replies: 3
    • Forum: Newly diagnosed
  4. M

    New MDA/ALS Clinic

    Hello Everyone! A little good news for people in Northeast Oklahoma! I am still a young pup when it come motor neuron disease and their types but I am learning fast, thanks mainly to this forum so far. I am a veteran and the my therapist at the VA sent out an all call to all the social...
  5. M

    Blanket diagnosis, is this usually the first step?

    Hello everyone, I am newly diagnosed since December 2015 with motor neuron disease (suspected ALS). I will start with a little background information first. I am married to the most wonderful woman in the world and have two grown children. I have always worked hard to support my family. I...
    • MyNexus2U
    • Thread
    • abdomen als chair cramps diagnosis early emg eyes fell fingers friend insurance medical military money muscle neurologist newly diagnosed physical therapy support swallow swallowing tests tremor twitches veteran weakness
    • Replies: 6
    • Forum: Newly diagnosed
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