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Dlightle, Sorry that you find yourself here, but at the same time glad that you found us. I have FTD. It was suspected for some time but officially confirmed just a few months ago. I have put my wife and adult children through quite a bit. The worst part is I was really not aware that...

Hi Everyone! I have been busy living. I had my feeding tube place last October. I don't need it yet but just went ahead and got it to be proactive. I made it to two OU football games in Norman. It was my first time to get to go. Wow what an experience. The last game was in early November...

I am so sorry that you find yourself here. I am still a little new to all this also as my diagnosis was confirmed earlier this month. Take a little time and let it all soak in. ALS stinks to say the least but life does not end with the diagnosis. Once doctors figure out what is going on then...

Nikki, Been working on second opinion and unfortunately it was confirm ALS rather than just PMA. It may seem kind of odd for some but it was sort of a relief. I am mostly affected all over now to some varying degree and progression is consistent and should have riluzole on board soon. A...

njk0407, I am so sorry that you find yourself here. Becky is right, try to take a deep breath and give the shock were off. I know right now even that is difficult to grasp, but it will and you will be able to start to think more clearly. My diagnosis was confirmed on Monday and it was a...

Chally, It ain't over until the fat man sings! I'm still fat for now and I am singing and when I tell you that I do not sing well, I am not lying. Go more OKC! Bryan:)

ShiftKicker, I love the idea of pop goes the casket and I am very open to suggestions! Becky, Now that nastiest squirt gun idea has some potential. I have a few in mind that would make good targets! I will be getting a PEG soon so if your husband has worked out the details of this...

To those people that know me are well aware that there is no road that I will not take for a good laugh. I have been passing along Chally stories for weeks. I entertain my family and friends on Facebook with little clips from my life and experiences with ALS. There is nothing sacred with me...

Chally, I have been on the other side of that fence and I have to admit that is the greatest game of all. You might be surprised just how many folks take a peek. It was at the VA and the eye clinic was quickly over run and the orderly took our stick away. That was ok because one of us...

Chally, Unfortunately you are correct, Choice sucks! With that being said though any and all resources can eventually help. If it had not been for choice I would not have gotten into the MDA ALS clinic to finally get the right diagnosis. I am so very sorry that Colaworman is having such a...