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Hi Sue, I to am a daughter and caregiver for my Mom who has ALS. She moved in with us( husband and 2 small children ) in Dec/05. It does have it's challenges, but many blessings as well. Glad you found us! It's a great place for information and support. Michele

Hi Richard & Dana, Being that my mother is a PALS who is 70, I thought I would add something. I completely understand what you are talking about. My mother has said many times that she is very fortunate that she was able to live to 69 without this disease. She, and I realise how very...

Hi Dee, I to am sorry you have lost your Dad. I hope that the fact he is now at peace, gives you some comfort. I am gratefull you are here. As you can see many of us have questions, and I'm sure you will be able to help us. Thank you for joining us. Take care

Hi Dana, Glad to hear your Dad is home again, Yaaaaaa! Try not to second guess your self. Your family did what your heart was telling you to do, so you did the right thing, remember that! I have no idea what it is like to come home with a vent, but can only imagine it to be a huge adjustment...

tbear, I am very confused. I thought that your breathing capacity slowly decreased until you could no longer breath on your own? Could you explain it to me if you have a minute? Thank you,

Well Jerry, My Mom was on a very restricted diet which contained no MSG or Aspartame for 4 1/2 months and it did nothing to even slow her progression, at all. And further more I don't believe Al's statement was based on ignorance or a negative attitude! You seem like the one with the negative...

My mother use to work in nursing home, and has first hand experience with this. I know that is a big part of her not wanting a vent or feeding tube. My only wish is that refusing these things will not make her final days that much more difficult for her. I 100% respect her wishes and have read...

Hi Liz How is your Dad doing with eating. Is he still able to eat most things? My mom is staring to have some problems with choking and has some repiratory problems, she said she doesn't want a feeding tube or vent either. I am just wondering how a person deals with all that. As you dont...

Hi Jodie, My Mom's spirits really picked up after she moved in with us. She now lives for her grandkids, and that's o.k. by me, as long as she happy. She too does not like to go out to much. We found she is more comfortable having people into the house to visit. She is in her comfort zone at...

HI Helper, My Mother who was Dx in Aug/05 moved in with us(husband and 2 small boys) in Dec./05. She can still get around a little bit, but does require help. Having her with us is hard, but wounderful all at the same time. I know my time with her is limited, so having her live with me gives...