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I sent you a msg on FB..... thank you so much Xx Amy

Hi Tillie... We've spoken on some of my posts before - my husband was diagnosed with pbp back in the spring. I had seen a thread you had commented on and wanted to ask you some questions about anger and outbursts if I could? Thank you...Amy

Thank you Laurie. Referral has been sent, so now we wait. ~ Amy

Nikki, Thank you! I will absolutely let you know. Your response and help is much appreciated. Amy

Laurie, Thank you for your imput. It is always welcome and appreciated. The stroke, neuro-muscular and ALS Dr's have all been at Dartmouth Lebanon. The neuro-muscular Dr is the one who gave PBP diagnosis and referred him on. She gave him a choice....he could continue there, go somewhere...

Tillie, Must apologize to you as well....just seeing your last post tonight. I appreciate very much you taking the time to respond. It's hard , but I let him make all his decisions, even if I don't necessarily agree (i.e.: returning to work). He often looks to me to answer or imput and I say...

Greg First I have to apologize....I just saw your last post just now. I'm so sorry as I know what taking the time to respond means. I'm very grateful for your thoughts. I can totally understand and appreciate his feelings for not really wanting one. In natural age progression we expect things...

Hi everyone, We were able to get into see the ALS specialist today as there was a cancelation. Hubby had lost more weight this week, as I thought he might since he went back to work and eating is trickier. Hubby and I had been talking over the past week about the PEG and when the doctor asked...

Sherry, Thank your welcome and thoughts. I have definitely found I have needed to be his voice, much to some Dr's displeasure. Amy

Sharon, Thank you for the welcome and the info. As soon as hubby is on board I will hop on the phone! Somewhere over the past month he must have changed his mind.....maybe now that's it's becoming all too real? Breaks my heart. Amy