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    This disease is straight from hell

    I feel the same way Vince, wondering what tomorrow will bring. I know my husband loves me but I also know what he's thinking when I look at his face....Not fair to either one of us!...or all of us! What a horrific disease. I try to keep positive for him, the children and grandchildren but...
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    Morbid question. I know. How will I know when the end is coming?

    I think a lot of us have the same fears and anxieties...I know I do...My fear is not so much when I will die but how. I just pray that I won't choke or be gasping for air. I've read so much on ALS and most articles say we should not fear the gasping for air as they give us Morphine. I think...
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    Life is GREAT!

    Thank you so much for the good words and positive attitude. Hopefully what you have to speak won't fall on "deaf ears". God Bless!
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    Life is good

    All sounds great...Love and admire your positive attitude!!
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    The travel season...

    Enjoy every day!!! I believe most of it is in our minds....mind over matter thing. Have fun and God bless you both and your daughter! Our son did that for us in January...a trip to CA...he came w/us and his wife graciously stayed home with the three children. It was wonderful not only to be...
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    My wife starts NP001 on Monday, 5/1/17

    Good luck to both you and your wife...Keep us posted. Lorrie
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    Another fall this morning

    So sorry Vince. I hope this is the last fall!!
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    Bipap

    I got a bipap a few weeks ago and was unable to use it at night. It freaked me out and I was pulling it off. The rep who dropped the bipap at my house told me that I had to use it at least 6 hrs in a 24 hr period or medicare would not pay for it. Honestly I was hyperventilating. I am no...
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    Down a notch

    God Bless you Chally...From what I've seen you are a positive member of this Forum...Good luck and take care!
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    Dress Shoes with an Ankle Brace

    I was able to find 2 pairs from the Arcapedico brand. One is a Mary Jane for "dress" and the other is a stretchable fabric. I so agree that the shoes we need to wear are ugly and I have the braces on both feet. Not an option for me to take braces off, wear regular shoes and go in a...
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