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I tried to post this in my previous thread about my diagnosis but that thread is closed. I tried to change my profile but I cannot access my information anymore. After some months of reevaluation my diagnosis was changed for a disease called Isaac's Syndrome. More information can be found here...

Hello everyone. I would like to share something I've been doing om my own. Although I don't have a definitive diagnosis, I'm suffering from neurological symptoms like cramps, muscle spasms, hiperreflexia and other things. I read on this forum and in another places that marijuana is good for this...

I was searching for info about Dexpramipexole. I'm not sure but it seems it is not doing very well as I thought. Altought the number of patients is lower it seems that this is doing better than dex. Has anyone tried it? If so is it the same as sodium chloride? I found that there are people...

Now I have my diagnosis. Doctors are saying it's bulbar type. I've been having many spasms in my face and tongue, some difficulty eating some kinds of food and some problems with my voice. I also have many muscle spasms in many other places throught my body and cramps everywhere. I also have...

I'he been reading about foot drop. Now I have this. I didn't know much about that. I thought that it was literally a foot dropped... I feel my foot very strange. I don't know how to explain it. It feels like it is sore. Sometimes it is hard to move the front part of it, especially if I am...

Do you know any good remedies to control or reduce als muscle fasciculations? I'm asking because I've been dealing with muscle spasms/fasciculations for some years but last month I started having them in a different way. Now they are happening in my legs and they are non-stop and no more...

Hello everyone. I would like to know if you took something effective to control the muscle twitches. I used to take magnesium and gabapentin but unfortunately none of this are working anymore and in my case the muscle spasms are uncontrollable now so I would like to try something else to see if...

First of all, I'm a computer scientist. Maybe what I'll write here is something crazy, but it is a clue that I have some days ago. I was looking on internet about histories of people who was healed from ALS. I found a history about a guy who was healed from ALS. Reading his history I've found...

Hi everyone. I haven't been writing for a while. My symptoms got worse last weeks. My fasciculations are very noticeable now. I can see them in almost all the muscles of my body. Even gabapentin isn't working as before. I'm trying not to worry too much about the twitches, but opther things are...

I don't know if I can post this link, but I will try because it sounds promising: http://www.hhmi.org/bulletin/nov2008/upfront/nature2.html God stay with you.