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  1. B

    Twitching 9 Years

    Hey everyone, I've been twitching for nine years. No weakness at all, and went to a neuro and was cleared back in 2008 after a few follow up appointments. However, since that time I had a fourth degree relative and my mom pass from what was thought to be ALS. My mother was 61 and my great-aunt...
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    What Can I Do?

    Hello all, First I wanted to give you guys a little background on myself. I am 27 years old and recently lost my mother to what was first diagnosed as an autoimmune disease ( it appeared to respond to treatment ) but then her condition worsened greatly and she passed away. Five days before her...
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    Speed of Progression?

    Are there any cases of ALS that you guys know of that have been fatal within seven months of onset of symptoms? My mother was diagnosed with ALS formally on Monday, after initially having a diagnosis of multifocal motor neuropathy in early October. Her serious symptoms started in late August...
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    IVIG Response?

    Hello all, My mother was recently diagnosed with ALS at a medical school hospital after having an initial diagnosis of MMN from her local neurologist. There was some evidence of conduction block in her first EMG, but the opinion from the doctor at the hospital said it didn't seem significant to...
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    Recessive Genes?

    I was wondering if there are any recessive genes that are linked of ALS? My mother recently was diagnosed at 61 and her aunt also was diagnosed at 78. However, she has 30+ cousins on that side of the family that are all 50+ and her aunt was one of nine children. No other family members have...
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