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Hi, Just looking for someone to talk to. I feel so depressed the past few days. I mean I've been sad and have my moments but it just feels like it's taken over my body. I keep picturing Jay when his breathing slowed and then his final breath. I go to work every day and then to go to my...

Jay passed on August 9th while in hospice at the hospital. His breathing starting getting bad the week before. He never had any trouble breathing until August 1st. My heart breaks that he didn't pass at home where I always told him he would be. But on August 4th I woke up to realize that he...

Hi, The past week or so my husband will ask me to put on the Trilogy but after a few minutes he wants it off and I immediately have to suction him but he won't put it back on. I feel that he's asking for it for a reason but just a few minutes a day isn't going to help. He won't explain to me...

We were talking with the doctor and Jay got hot and wanted to go to the hallway. He started acting strange and wanted me to stand him up but I said no and the doctor said no. His eyes rolled back and he was getting pale. I said the doctor his eyes are rolling back and he said I know and just...

Last night I rubbed his feet and shoulder blades with peppermint oil and then I rubbed his head and face and told him I love him. His response was that we need to talk because this house isn't good for his health. I told him I didn't understand what he meant but he told me I do know what he...

Jay asked to be baptized so we're having it done tonight. Instead of being sprinkled with water he wants to be submerged in the water. Which will require them to lay him on a sheet and put him in the water. I don't see this as being possible. He has no use of arms and cannot walk. I tried to...

I can't begin to explain how bad things are now. Jay is so miserable and uncomfortable and angry with me. He's mad at me every single day. He's saying crazy things that he wants to sell the house. He's absolutely mean to me. Picks at me all day long. He's so uncomfortable and in pain. I know...

Is this normal? Jay says he can't swallow his spit so I have to suction him every few minutes throughout the day. I don't mean to sound selfish but this is making me crazy. Before ALS Jay was a always a spitter and it drove me crazy. If he was outside he would spit nonstop. So I'm wondering...

My husband is always hungry. He's completely tube fed now. Last few times he tired to eat it didn't go too well. He has about 5 cans per day but he's constantly hungry. I make him smoothies and I've made him scrambled eggs and then put them in the blender. Any suggestions for what I can do...

He hasn't talked to me in three days. He's mad over something so he won't even look at me. Told me he can't turn his head to the right to look at me. But when I walked away his head was turned to the right just fine. I looked at him and he knew it and started to smirk. That is what he does...