Thanks for the link, my country is unfortunately not on the list (I am from Czech Republic).
I don't quite believe her because she is supposed to be one of the ALS specialists (by her profile and chairmanship of company taking care of ALS patients), therefore I see it as excuse not to give...
Hello Nikki,
my mind might play tricks with me as this is odd situation and you are correct in saying I find difficult to accept what I am being told. Also because she actually seems to be pretty involved around ALS patients, she specialises in neuro-muscular disorders and seems to be in...
I was told basically the same as before - that I had activity due to tension in which case she was unable to interpret what she was seeing however that she believes there isn't anything and that probability of ALS is minimal. She did quick clinical check and did not identify weakness or...
Hello,
tomorrow I will be seeing the doctor who did the last EMG (as described above). Do you have any idea what questions I should ask her so when answering these she might possibly reveal some information possibly indicating real state of things?
regards,
Petr
hello, thanks for your PM - I read in your main post that finally you were able to relax the muscle enough for the test to be meaningful. Unfortunately I haven't been able to do this and the question remains - was it IT or just tension based noise? I shall know within next two weeks - I can't...
Thanks Nikki for making that clear...
Believe it or not - my mother hearing the news and anticipating me going through meltdown decided to stop by the hospital (without me knowing), found out the doctor and had a talk with her - unbelievable. Surprisingly the doctor was willing to share her...
thanks hunterross258,
I actually hope for feedback of people with similar behaviour who have NOT been diagnosed with ALS as it would indicate there is reason for hope. I see only ALS diagnosed are allowed to post - which I was not aware before.
I hope your condition gives you reasonably good...
The peculiar thing about it is that it did sound more or less regular and the intensity was even, it did not fade out and then come back. It was like regular click/pop sound with constant pattern.
I do not have diagnosed clinical weakness of particular muscles however I am gradually loosing my...
Hello,
I have been a lurker here (and at aboutbfs.com) for good few months. I have been trying to convince myself about BFS and did not want to write panic posts after every new twitch hotspot - which I have many by now - until I attended my first EMG test today.
The test was scheduled to rule...