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  1. I

    Ceftriaxone

    I started the ceftriaxone trial in Nov. 07 and dropped out in Oct. 08. I definitely don't think it helped me but I'm pretty sure I was getting placebo both a.m. and p.m. Reason for my thinking that was no odor of drug. I was told by others that cef has strong urine smell. The main reason I...
  2. I

    Is This an ALS Symptom?

    Beth, Don't know iif this is the same as the "freezing" you've experienced, but I've had freezing lasting several minutes in my hands. They lock in place and won't move. When I told the neuro, he said they were cramps. As far as the fasciculations, I never had any in my tongue but my speech...
  3. I

    Anti-depressents pro or con?

    Mahea, I cry when I'm feeling sad or even when I see a "touching" Hallmark commercial, but I've always done that and don't think that means I'm clinically depressed and in need of an anti-depressant. I'm able to enjoy life, don''t dwell on "hopelessness", and don't sleep all the time or have...
  4. I

    My CT-Scan shows nothing!

    Your continued dizziness may be due to knocking your crystals out of place. I have also had several falls on my head requiring trips to the ER, CT scans, and staples/stitches. Following the most recent one about 3 weeks ago I experienced severe dizziness, the room seeming to move around me...
  5. I

    Disability?

    Social Security Disability is automatic with ALS diagnosis. Individual and employer-sponsored disability insurance are not. If ALS affected only someone's legs but his job involved only sitting he might not be considered disabled under the insurance. Mine not only required that I not be able...
  6. I

    Questions re: new symptoms

    My ALS was bulbar onset with slurred speech as first symptom. I also had off and on tingling in one cheek and around my mouth. Neither of the neurologists I went to early on seemed very concerned about the tingling. It stopped after a few months so I'm not sure it was associated with the ALS...
  7. I

    Disability?

    Just want to say that all employer disability policies are not the same, so be sure to check out the provisions of yours before you do anything. My group LTD disability through work is with Assurant and it has a provision that in addition to being able to perform the job duties, a person must...
  8. I

    Question about Bulbar ALS communication options

    I have a dynawrite with the phone accessory. It does work but 1) some people cannot understand the synthetic voice and 2) even if they can understand it they don't realize how long it takes me to type a reply and often hang up thinking I have ended the call. So now I'm using TTY like deaf...
  9. I

    Ceftriaxone Question

    By the way, when I was in ceftriaxone trial I started taking lithium and they didn't make me quit. I know another woman who did also. Researchers said they didn't know yet if taking lithium would be allowed in Phase III ceftriaone.
  10. I

    Ceftriaxone Question

    I was in Ceftriaxone stage I and II from 10/07 til 10/08 at Washington U in St. Louis. They told me with the data from I & II they expect to start phase III soon, but I dropped out. I decided it was too much hassle--twice daily infusions, a lot of time for my husband who now has to do so many...
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