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  • Users: SheilaZ
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  1. S

    My love...my John...

    I lost the love of my life, my Hubby, John, on June 5, 2017. ALS is a horrible disease...I pray for a cure one day soon....for all diseases. ALS did not beat John....John beat ALS....with his smile, his determination, his strive to live each and every day with joy, and not sorrow! Even his...
  2. S

    I feel so helpless right now....

    Jan 20, 2016 my Hubby was diagnosed with this horrible disease called ALS....through it all, he's never complained...not one word....he always says.."why complain, it is what it is...I can't change it". We've been blessed with so many great days..made each other laugh...instead of cry...and even...
  3. S

    Taking one Day at a time....

    When my Hubby, John, was diagnosed in Jan of this year he was having so many issues....breathing, neck drooping, no muscle in his left hand and arm, so weak couldn't hardly walk, he can't lay down...sleeps in a recliner chair do to his breathing.....was in a wheelchair by May...in a motorized...
  4. S

    Advice please!

    I just have a few questions....I hope someone can help me. John, my Hubby.....was diagnosed Jan this yr.....it started fast....from walker to wheelchair in February.....to motorized chair now......his Trilogy machine since January, has been a life saver. John was having severe headaches and...
  5. S

    Sometimes....

    Sometimes....when you feel helpless...and you want to do so much more for your love one.....it doesn't take much to make you so very thankful!!! My Hubby, John, got his Motorzied chair.....seems like it took forever...since July....but it finally came!! He was like a kid at CHRISTmas....lol...
  6. S

    Need some info, please

    My hubby is in a wheelchair, we are in the process of getting him a motor chair. He was diagnosed Jan, 2016....it's been fast moving. I pray someone can help answer some questions! 1. My hubby is a big man, 280lbs.....is there anything out there to help me lift him into a vehicle from his...
  7. S

    Need Advice on a mobile chair

    My hubby can't walk do to weakness and breathing....he's been using a wheelchair...but we need a more stable one..that supports his head......any advice is very much appreciated!! GOD Bless Everyone and thank you! Sheila
  8. S

    I need help...have a question

    My Husband is having severe pain in his back, he says its the nerves, below his neck...is there anything anyone can recommend that will help....heat pads, ointment, anything at all....THANK YOU! GOD Bless Everyone Sheila
  9. S

    Is there any ointment that will help with nerves

    My Husband is having severe pain in his back, he says its nerves...is there anything anyone can recommend that will help....heat pads, ointment, anything at all....THANK YOU! GOD Bless Everyone Sheila
  10. S

    I've been reading a lot of post!

    I've been reading a lot of post, and I was wondering how does one know how long one has with ALS. The million dollar question, I'm sure! My Hubby was diagnosed last month, though they think he has had it for 2 years, already! He has severe breathing issues, he can't walk as far as 40 ft...
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