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About a month and a half ago or so, my energy level just plummeted off a cliff. It's a struggle to do anything. I get really tired going up stairs. I get tired walking. I get tired feeding. I usually don't really get out of bed until noon. I manage to get a couple feedings in before that, but I...

Has anyone gotten Liquid Hope covered by their insurance provider? I tried it out this past week and it seemed to go down easily.

Recently, my feedings have started to just not sit well in my stomach. I'm supposed to do at least 5, preferably 6, feedings a day and I'm just dreading them. At one point, I was using Boost Very High Calorie for my feedings. But I was paying out of pocket for that, and, at $40/box, that will...

Anyone with a MIC-KEY find the valve gets clogged? I'll do a feeding and have to plunge the first bit, then it flows normally. After, I rinse everything out with hot water. Next time I feed, same situation. Is there some additional bit of care I need for the valve?

I've been using this guy – Pill crusher syringe found on amazon to crush my pills. It works great for a week or so, then becomes increasingly tighter and harder to pull and twist. I broke the handle off the first one I got because it became too tight. Any suggestions on how to make this thing...

I just tried to post this in the PEG section but it rejected it for some reason. Anyway: Anyone want to recommend an awesome pill crusher? I have one of these guys (https://images-na.ssl-images-amazon.com/images/I/41XKCDfo8PL._SY355_.jpg) but it takes a lot of strength to deal with it. I...

How do you guys deal with this? It's a couple fingers on my right hand and my thumb on the left. The joints are swollen and hurt. I have a prescription for some OT, so I'm going to try that. Is this reversible at all?

Has anyone tried either acupuncture or chinese herbal medicine to alleviate various symptoms? I was talking with a friend who has lung cancer and she said acupuncture was helping her fatigue levels. I've done 3 treatments so far and am not noticing much effect. My guy wants to refer me to...

Just got my tube a couple weeks ago. I swallow some pills (although that seems to be going) and crush others and put them in via the tube. My question is, how do you make sure you're getting everything in? I seem to constantly have some residue either in the syringe, or the cup I use to mix...

Anyone else have teeth chattering going on? It's as if I were freezing, but I'm not. It seems to happen when I'm tired or have expended a lot of energy. And, of course, I saw my neurologist yesterday and totally forgot to ask him. So, is this common? Does it get worse?